Sunday, September 30, 2012

Chiari Awareness Month

September is Chiari Awareness Month

I just became aware that September is Chiari Awareness Month and here it is the last day of September. I'm becoming more and more aware everyday by what I am learning and by how my body is reacting; the last four days my symptoms have really been making me feel pretty terrible. I guess it just helps to confirm that the surgery is needed. Tomorrow I have my pre-op testing at the hospital....the time is near, it's becoming a reality.



I got this list from another Chiari awareness blog.

What can you do to help support and spread awareness for those with Chiari Malformation?
It's very simple:
Ask us about it.
Take the time to learn.
Share a link on your facebook/twitter etc.
Tell someone else about it.
Go to a Chiari Walk. (can be found on Conquerchiari.org)
Wear purple this month especially.
(Join the facebook event and share it! That helps too!)

Chiari Malformation is almost as common as Multiple Sclerosis (MS). You've at least heard of MS before haven't you? You may not know what it is...but you've heard of it. Chiari is so misdiagnosed that its name is not out there as is MS. About 1 in 1,000 people have Chiari. It affects more than 300,000 people in the U.S.


2 comments:

  1. Wow ! Very informative !!! I wore purple today at church ;) Love you !!!

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    1. Love you my dear, dear son! I appreciate you, and all the support you give me, very much. You are one of the biggest joys in my life!!! I'm so grateful for you! xoxo Mom

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